2012 ANNUAL REPORT
CONTENTS Mission, Vision and Values . President’s Letter .
CURE Highlights . Financials .
. . .
Board of Directors .
Advisory Board .
C O L L A B O R A T I O N U N D E R S T AMISSION, N D I VISION N G &RVALUES E S E A R C H E D U C A T I O N C O L L A B O R A T I O N U N D E R S T A N D I N G R E S E A R Collaboration C H E D U C A T I O N C O L L A B O R A T I O N U N D E R S T A N D I N G R E S E A R C H E D U C A T I O N C O L L A B O R A T I O N U N D E R S T A N D I N GUnderstanding R E S E A R C H E D U C A T I O N C O L L A B O R A T I O N U N D E R S T A N D I N G R E S E A R C H E D U C A T I O N C O L L A B O R A T I O N U N D E R S T A N D I N G R E S E A R CResearch H E D U C A T I O N C O L L A B O R A T I O N U N D E R S T A N D I N G R E S E A R C H E D U C A T I O N C O L L A B O R A T I O N U N D E R S T A N D I N G R E S E A R C H E D U C A TEducation I O N C O L L A B O R A T I O N U N D E R S T A N D I N G R E S E A R C H E D U C A T I O N C O L L A B 2O R A T I O N U N D E R S T A N D I N G R E S E A R C H E D U C A T I O N
U R E
PRESIDENT’S LETTER Dear Friends, Looking back over the past year, The Cholangiocarcinoma Foundation (CCF) made great strides. What began in 2006 as a simple discussion board for patients and caregivers has evolved into a global network of people dedicated to supporting, educating, advocating, researching, and treating those affected by cholangiocarcinoma (bile duct cancer). With this reflection, I am pleased to present to you our first annual report. This was a landmark year for many reasons. As you will see in this annual report, our donations increased significantly from the previous year. This increase allowed the Foundation to fund grants of approximately $200,000 for cholangiocarcinoma-specific research in 2012. Through these grants we were able to collaborate with physicians, researchers and other foundations who share the same passion we do for the successful treatment of this cancer. This annual report highlights our collaborations and funding of the Mayo Clinic, the UCSF Bili Project, Harvard, and ASCO’s Conquer Cancer Foundation. We are pleased with these new collaborations and look forward to continued cooperative endeavors as we work together toward a CURE. Additionally, CCF took steps to secure its infrastructure for sustained future growth with the hiring of our executive director, Kim Crittenden. Her experience in the non-profit arena will assist CCF to achieve its goals. There are several other projects which gained traction this year. These will carry forward into 2013, and help drive our mission in the years ahead. We are pleased with our progress this year; however, we continue to identify opportunities and challenges which lie ahead. We have many on-going projects, notably our CCF patient registry/ database, the book, 100 Questions and Answers about Biliary Cancer, and our highly-trafficked website (cholangiocarcinoma.org), which is going through major reconstruction in response to user needs and requests. Lastly, I am pleased to announce The Cholangiocarcinoma Foundation’s first stakeholders conference, to be held February 27-28, 2014 in Salt Lake City, Utah. I want to extend my personal gratitude to the many volunteers and countless others who have given of their time, talents and means. We simply could not move forward without so much selfless sacrifice from so many.
Stacie Clements Lindsey STACIE CLEMENTS LINDSEY BOARD PRESIDENT & FOUNDER
C.U.R.E. HIGHLIGHTS FOR 2012
Collaborative Research Grants Awarded 2012 The Cholangiocarcinoma Foundation awarded $184,202 in Grant Funding in 2012 for the following: • $40,000 Grant was awarded to the UCSF Hepatobiliary Tissue Bank (CC#124512) which will support the advancing translational Science in Cancers of Biliary Tract through Biorepository of Human Tumor and Blood Specimens. The goal of the HBTB is to advance our understanding of this rare and under-studied tumor type. • $44,202 was given to the Mayo Clinic for Hepatobiliary Neoplasia Registry and Biorepository. The overall goal is to support the collection of clinical information and samples of blood and tissue from patients with hepatobiliary neoplasia in an IRB approved International Hepatobiliary Neoplasia Registry and Biorepository. • $60,000 Young Investigator Award to The American Society of Clinical Oncology, was awarded. This grant is intended to raise awareness and trigger progress against cholangiocarcinoma, while providing critical early funding for physician-scientists at the beginning of their careers in the field. Providing early career grants helps encourage investigators to focus their career on bile duct cancer. • $40,000 was awarded for Cell Lines and Novel Antibodies at Massachusetts General Hospital. The support will test a novel immunotherapeutic strategy which targets not only differentiated cholangiocarcinoma cells, but all cholangiocarcinoma stem cells. 4
Advocacy/Awareness Efforts to Promote Understanding and Provide Education Education & Advocate Training • FDA – Food and Drug Administration FDA training for “Patient Representatives to the FDA Advisory Committees.” • RAN - Research Advocacy Network
Committees, Taskforces, Workgroups and Collaborations • NCI - GI Task Force National Cancer Institute
• Alliance to build a stronger FDA
• NCI - Hepatobiliary Task Force
• Faster Cures
• FDA: Patient Rare Disease Day
• Drug Information Association
• NORD RARE Disease Day 2012
• TargetCancer Symposium
• 2012 DIA Patient Advocate Fellowship Alumni
• GI ASCO
• NIH Rare Disease Day
Represented Patients and the Foundation at Major Medical Conferences • ASCO-American Society of Clinical Oncology
• ONS - Oncology Nursing Society
• ASTRO-The American Society of Radiation
• DIA - Drug Information Association
Oncology • AASLD-American Assn. for the Study of Liver Diseases
• NORD - National Organization for Rare Disorders • FDA - Food and Drug Administration
• NIH - National Institute of Health
• American Association for Cancer Research
• GI ASCO
• DDW - Digestive Disease Week
• Society of Surgical Oncology
Donations Other Income
>99% >99% <1% <1% 2012
249,773 $ 166,317
5% 31% 64%
Supporting 10% 15% Fundraising 10% 24% Grant Awards 80% 61%
268,226 $ 130,337 2012
Advocacy, Awareness & Marketing
Business Operations & Contracted Services
COMPARATIVE STATEMENT OF ACTIVITIES FOR FISCAL YEAR 2012 2012
Beginning Fund Balance
$ $ 185,456 149,476
Total Other Income
Total Income $ $ 249,773 166,317
Total Mgmt and General
Total Foundation Grants
$ $ 268,767 130,337
Net Income/(Loss) $ $ (18,994) 35,980
Ending Fund Balance
$ $ 166,462 185,456
CHOLANGIOCARCINOMA.ORG Originally launched in 2006, our website has proven to be a successful gateway to patients, caregivers and the medical/research community.
FY 2012 244,776 Visits
113,038 (46.2%) were new visitors to the site.
OUR GLOBAL COMMUNITY Site visitors from around the world.
U.S.A. = 71.5%
India = 1.7%
Egypt = 0.4%
Canada = 6.5%
Bangladesh = 1.6%
Germany = 0.4%
United Kingdom = 6.0%
Thailand = 0.6%
Phillipines = 0.4%
Australia = 2.7%
Ireland = 0.6%
Other = 7.6% 9
NO RUSH Average amount of time spent on site: 5 minutes 52 seconds
STAYING POWER Visitors look at an average 6 pages per visit
PEOPLE ARE TALKING There were 9,524 posts and 2,688 new topics created on our message boards, with 582 new members.
EXECUTIVE BOARD Stacie Lindsey, President Herriman, Utah Stacie’s brother, Mark Clements, was diagnosed and ultimately passed away from Cholangiocarcinoma in 2005. Stacie advocated for her brother, extensively researched treatment options and began networking with other patients, researchers and healthcare professionals. From this experience, the Cholangiocarcinoma Foundation was born. Stacie is a founding member and has served on the board of directors since its inception. Stacie resides in Salt Lake City, Utah, where she is the mother of five small children. She holds a Bachelor of Arts degree in Psychology from Brigham Young University, and is an active member in her church and community.
Dawn Duchene Lyon, Vice President & Director of Communications/PR Trumbull, Connecticut Dawn has over 10 years experience in marketing with top agencies. As Senior Account Director for Crossbow Group, she directs marketing strategy, tactics and execution to build customer relationships and deliver measurable results. She holds a B.S. in Advertising from the SI Newhouse School of Communications at Syracuse University and an M.B.A. from The University of Connecticut. Her mother was diagnosed with cholangiocarcinoma in June 2008.
Kim Crittenden, Executive Director & Secretary Salt Lake City, Utah Kim brings more than 20 years of experience as an administrator, program manager, volunteer and board member serving the non-profit sector to The Cholangiocarcinoma Foundation. In her professional life she specializes in small, start-up, and growing non-profit organizations with experience in non-profit administration, program development and evaluation; volunteer recruitment and management; conference and special event planning; as well as grant writing and fundraising. She earned dual bachelor degrees in Sociology and Behavioral Science and Health from the University of Utah. Currently, she is finishing a Masters of Public Administration with an Executive Cohort at the University of Utah. She resides in the beautiful Heber Valley east of Salt Lake City with her son and cocker spaniel.
Lawrence Goodfield, Treasurer Philadelphia, Pennsylvania Larry is a senior manager with over eleven years of experience at pwc, a professional services firm. He provides assurance and advisory services to clients in the financial services industry, including investment funds, investment advisors, operators, real estate investment trusts and homebuilders. Larry serves both Philadelphia and New York clients. He has a bachelors of science in accounting from the Pennsylvania State University. Larry joined The Cholangiocarcinoma Foundation shortly after his father, Lawrence (Larry) Goodfield, was diagnosed with cholangiocarcinoma in February 2011.
Marion Schwartz, Director of Advocacy San Francisco, California Marion serves on the Board of Directors and functions as moderator on the discussion board. She attends international and national conferences, as well as FDA, NIH and NCI meetings. Marion obtained her research advocacy training by attending numerous medical and scientific symposiums, the Coalition of Cooperative Groups Workshops, Research Advocacy Network tutorials, and through her engagement with the NCI Disease specific Task Force for Hepatobiliary Cancer. She received her BS in psychology from the University of Bonn/Germany and is bilingual, fluent in English and German. A 2012 DIA Patient Advocate Fellowship Alumni and guest speaker she also is a member of the Alliance to build a stronger FDA. Her passion for the Cholangiocarcinoma Foundation evolved after the diagnoses and subsequent passing of her husband in 2007. Marion lives in Sonoma County, California.
Sean Turbeville, PhD, Board Member San Francisco, California Sean Turbeville, PhD, is the Global Director of Medical Information at Onyx Pharmaceuticals, Inc. He has overseen development of global medical information services for products treating orphan metabolic disorders and oncology, developing custom infrastructures to support these unique products from pre-launch to postmarketing initiatives. With an in-depth knowledge of global medical affairs, clinical drug development, lifecycle management and post-marketing studies, Sean has supported the launch and commercialization of products in North and South America, the European Union, Eastern Europe, Asia Pacific, and the Middle East. Sean completed his PhD in Epidemiology from the University of Oklahoma Health Sciences Center where he went on to be an Adjunct Associate Professor of Epidemiology. Sean acts as peer reviewer for several scientific journals and has a vast array of scientific interests including sports injury prevention in young athletes. His list of publications includes numerous research and review articles, as well as publications discussing current issues facing medical information departments, including challenges medical information departments face with the globalization of the pharmaceutical industry.
Emeritus Members Demetrios Anaipakos, 2006-2010 Ray Clements, 2006-2010 Joni Craighead, 2006-2008 Sara Hinkley, 2006-2012 Mark James, 2006-2008 Dr. Rudolph Pena, 2006-2009 Rick Pollock, 2007-2012
MEDICAL ADVISORY COMMITTEE Ghassan K. Abou-Alfa, MD
John Hopkins Cancer Center
Research Interests and/or Clinical Specialties: Primary liver cancer (hepatocellular carcinoma), pancreas, gallbladder, and bile duct tumors
Research Interests and/or Clinical Specialties: Gastrointestinal oncology; pancreas, gall bladder, and bile duct tumors; primary liver cancer
Medical Education: Dr. Abou-Alfa recieved his MD at the American University of Beirut and completed both his residency and fellowship at the Yale University School of Medicine.
Medical Education: Dr. Choti is a graduate of the Yale University School of Medicine and received his surgical training at the Hospital of the University of Pennsylvania. After completing his general surgery residency in 1990, Dr. Choti went on for advanced surgical training in surgical oncology at the Memorial Sloan-Kettering Cancer Center in New York.
Steven R. Alberts, MD, MPH Mayo Clinic Research Interests and/or Clinical Specialties: Gastrointestinal malignancies, epidemiology, cancer prevention Medical Education: Dr. Alberts recieved his MPH – Epidemiology University of Hawaii, Manoa and his MD from The University of Washington, School of Medicine. He completed his residency in internal medicine at The Mayo Graduate School of Medicine, Mayo Clinic College of Medicine and; fellowship in Hematology/Oncology Mayo Graduate School of Medicine, Mayo Clinic College of Medicine.
Nabeel Bardeesy, PhD Harvard Medical School and Massachusetts General Hospital Cancer Center Research Interests and/or Clinical Specialties: Interface of metabolism and epigenetic reprogramming in GI cancers, development of genetically engineered mouse models of human cancer. Medical Education: Dr. Bardeesy recieved both his BS and PhD in Biochemistry from McGill University in Canada, followed by a Postdoctoral Fellowship in Medical Oncology at the Dana-Farber Cancer Institute at Harvard Medical School.
Oliver Bathe, MD FRCS(C) University of Calgary Research Interests and/or Clinical Specialties: Surgical oncologist with a special interest in hepatobiliary, pancreatic and gastrointestinal tumors Medical Education: Dr. Bathe graduated from the University of Calgary Medical School and went on to do his General Surgery residency at the University of British Columbia. He then did postgraduate Fellowship training at the University of Miami, Florida in Surgical Oncology
A. William Blackstock, Jr. MD Wake Forest Baptist Medical Center Research Interests and/or Clinical Specialties: Lung cancer, pancreatic cancer Medical Education: Dr. Blackstock received his BA at Wake Forest University in 1985 followed by his MD in 1989 at the Wake Forest University School of Medicine. He completed internships at Pitt County Memorial Hospital in 1990 and the University of North Carolina Affiliated Hospitals in 1994. He completed his Fellowship at North Carolina Baptist Hospital in 1994.
Charles Blanke, MD Oregon Health & Science University Research Interests and/or Clinical Specialties: Hematology/oncology, gastrointestinal cancers Medical Education: Dr. Blanke earned an M.D. with distinction from Northwestern University, completed residency training at the Gundersen Medical Foundation, where he served as chief resident, and was a hematology/medical oncology fellow at Indiana University, where he also served as chief fellow. He is a fellow of the American College of Physicians, the American Society of Clinical Oncology and the Royal College of Physicians and Surgeons of Canada.
William C. Chapman, MD, FACS Washington University School of Medicine in St. Louis Research Interests and/or Clinical Specialties: Liver transplantation, liver surgery, bile duct surgery, liver tumor treatment, radiofrequency ablation, image-guided liver surgery Medical Education: Dr. Chapman completed Medical School at The Medical University of South Carolina, Charleston, SC, in 1984. He served Fellowships in Pathogenesis of Liver and Biliary Tract Disease at Vanderbilt University in 1989 and in Hepatobiliary Surgery and Liver Transplantation at Kings College Hospital, London, England in 1992. His completed his Residency in General Surgery at Vanderbilt University Hospital, Nashville, TN in 1991.
Michael Choti, MD, MBA
Memorial Sloan Cancer Center
Laura Dawson, MD, FRCPC
The Princess Margaret Cancer Center Research Interests and/or Clinical Specialties: Radiation oncology; gastrointestinal cancer, with a focus on hepatobiliary malignancies. Head and neck cancer; Image Guided Radiation Therapy/IGRT; Stereotactic Body Radiation Therapy/SBRT Medical Education: Dr. Dawson, MD, FRCPC received her MD and completed her radiation oncology residency training at the University of Toronto. She then completed a fellowship in high precision radiation therapy in liver and head and neck malignancies, at the University of Michigan in Ann Arbor.
Laura Williams Goff, MD
Vanderbilt University Medical Center Research Interests and/or Clinical Specialties: Hematology/oncology, gastrointestinal cancers, liver, and biliary tract Medical Education: Dr. Goff received her medical degree from the University of Texas Health Science Center in San Antonio. She went on to complete a residency in Internal Medicine at the University of Texas Southwestern Medical Center at Dallas and then moved to Vanderbilt University for fellowship training in Hematology and Oncology.
Gregory Gores, MD Mayo Clinic
Research Interests and/or Clinical Specialties: Gastroenterology and hepatology Medical Education: A native of North Dakota, Dr. Gores received his undergraduate (Phi Beta Kappa) and M.D. (Alpha Omega Alpha) degrees from the University of North Dakota. He completed a fellowship in internal medicine and gastroenterology at Mayo Clinic Graduate School of Medicine. During his gastroenterology fellowship, he was a National Institutes of Health (NIH) fellow in the laboratory of Nicholas F. LaRusso, M.D. Before assuming a faculty position at the Mayo Clinic in 1988, he was a Mayo Foundation Scholar at the University of North Carolina at Chapel Hill in the laboratory of John J. LeMasters, Ph.D., M.D.
Daniel G. Haller, MD, FACP, FRCP University of Pennsylvania
Research Interests and/or Clinical Specialties: Gastrointestinal malignancies Medical Education: Dr. Haller received his M.D. from the University of Pittsburgh. He completed residency and oncology training at Georgetown University.
Renuka Iyer, MD
Roswell Park Cancer Institute Research Interests and/or Clinical Specialties: Bile duct cancer, carcinoid, cholangiocarcinoma, esophageal cancer, hepatocellular cancer, pancreatic cancer Medical Education: Dr. Iyer received her MD at the University of Mumbai, Grant Medical College. She completed her residency at Lincoln Medical and Mental Health Center, Cornell University and her fellowship at Roswell Park Cancer Institute.
Milind Javle, MD
MD Anderson Cancer Center Research Interests and/or Clinical Specialties: Pancreatic and biliary cancers Medical Education: Dr. Javle received his medical degree at Grant Medical College, University of Bombay, in Bombay, India. He then pursued postgraduate training in internal medicine at the State University of New York (SUNY) in Buffalo, NY, followed by a clinical fellowship in medical oncology at Roswell Park Cancer Institute in Buffalo, NY.
Tomoaki Kato, MD
New York-Presbyterian Hospital/Columbia University Research Interests and/or Clinical Specialties: Surgery, liver, pediatric, multivisceral, intestinal transplantation, ex vivo tumor resection Medical Education: Dr. Kato received his BS in Biochemistry at the University of Tokyo, Tokyo, Japan in 1983. He then studied medicine at Osaka University Medical School; Osaka, Japan graduating in 1991 with his MD followed by an internship in General Surgery. Dr. Kato completed his residency at Itami City Hospital, Hyogo, Japan and accepted a position as a Transplant Fellowship at the University of Miami’s Jackson Memorial Hospital in Miami Florida.
R. Kate (Katie) Kelley, MD UCSF Medical Center
Bruce D. Minsky, MD BMD Anderson Cancer Center
Research Interests and/or Clinical Specialties: Oncology/hematology, cholangiocarcinoma, hepatocellular carcinoma, gall bladder, gastrointestinal, esophageal, colon,rectal, pancreatic cancers, gastrointestinal stromal tumors
Research Interests and/or Clinical Specialties: Radiation oncology, clinical research investigator, gastrointestinal cancer
Medical Education: Dr. Kelley received her undergraduate degree in biochemical sciences from Harvard University in 1997. She completed her medical training at the UCLA School of Medicine in 2002, followed by a residency in internal medicine at UCLA from 2002-2005, and chief residency in 2005-2006. She received her fellowship training in Hematology/Oncology at the University of California San Francisco from 2006-2009.
Medical Education: Dr. Minsdky received his medical degree from the University of Massachusetts in 1982. He was a Medical Intern at New England Deaconess Hospital and completed his residency in radiation therapy at the Harvard Joint Center for Radiation Therapy.
Richard Kim, MD
Moffitt Cancer Center Research Interests and/or Clinical Specialties: Gastrointestinal tumors and hepatobiliary, colon cancer Medical Education: Dr. Kim received his medical degree from the University of Miami School of Medicine and completed a residency in internal medicine at the University of Illinois at Chicago. He pursued a post-doctoral fellowship in hematology and medical oncology at Yale University Comprehensive Cancer Center in New Haven, CT.
Robin D. Kim, MD Huntsman Cancer Institute and University of Utah
Tushar Patel, MB, ChB Mayo Clinic Research Interests and/or Clinical Specialties: Clinical and transplant hepatology and hepatobiliary cancers Medical Education: Dr. Patel earned his MD at the University of Glasgow, Glasgow, Scotland. He completed clinical training with specialized training as a clinicianinvestigator at the Mayo Clinic as well as his Residency in Internal Medicine & General Surgery followed by a fellowship in Gastroenterology at The Mayo School of Graduate Medical Education, Mayo Clinic, Rochester, MN.
Lewis Roberts, MB, ChB, PhD
Research Interests and/or Clinical Specialties: Surgery, General, Liver Disease and Cancer, Transplant Surgery liver, Kidney, Pancreas
Medical Education: Dr. Kim received his Bachelor of Arts from The Johns Hopkins University and his Doctor of Medicine from Jefferson Medical College. He completed his residency in General Surgery at the University of Massachusetts School of Medicine which included a two-year research fellowship in liver regeneration and cancer. Following his residency, Dr. Kim went on to the University of Toronto and the Hospital for Sick Children for his Fellowship in adult and pediatric Multiorgan Transplantation and Hepatobiliary Surgery..
Medical Education: Dr. Roberts received his MB ChB from the University of Ghana Medical School followed by a Medical and Surgical Internship at Korle-Bu Teaching Hospital, Accra, Ghana. Additionally he received a PhD in Physiology and Biophysics from the University of Iowa. He was a Graduate Research Fellow in the Department of Physiology at The University of Missouri. He completed both his Clinician Investigator Fellowship in the Gastroenterology Fellowship Program and Residency in Internal Medicine at Mayo Graduate School of Medicine, Mayo Clinic College of Medicine.
Jennifer Knox MD, MSc, FRCPC Princess Margaret Cancer Center Research Interests and/or Clinical Specialties: Hepatopancreatobiliary (liver/pancreas/ biliary) surgery Medical Education: Dr. Knox completed a Master’s of Science in molecular biology and obtained her medical degree at the University of Toronto. After completing her medical oncology specialty training she completed a fellowship at The Princess Margaret focused on new drug development and clinical trials.
Heinz-Josef Lenz, MD, FAC
USC Norris Comprehensive Cancer Center Research Interests and/or Clinical Specialties: Regulation of gene expression involved in drug resistance, patients at high risk of developing colorectal cancer, and determination of carcinogenesis, methods of early detection, and better surveillance of these cancers. Medical Education: Dr. Lenz received his medical degree from Johannes-Gutenberg Universität in Mainz, Germany, in 1985. He completed a residency in Hematology and Oncology at the University Hospital Tübingen in Germany, a clerkship in Oncology at George Washington University in Washington, DC, and a clerkship in Hematology at Beth Israel Hospital of Harvard Medical School in Boston, Massachusetts. He served subsequent fellowships in Biochemistry and Molecular Biology at the USC Norris Comprehensive Cancer Center
Robert C. G. Martin II, MD, PhD University of Louisville
Research Interests and/or Clinical Specialties: Surgical Oncology, Liver Tumors, Pancreatic, Gastric, Colon, Esophageal Cancer, Bile Duct Tumors, Sarcoma, Melanoma Medical Education: Dr Martin received this both his MD and PhD from University of Louisville School of Medicine followed by his by Residency in General Surgery at The University of Louisville Hospital in 2000. He completed his fellowship in Surgical Oncology/Hepatobiliary Surgery at Memorial Sloan-Kettering Cancer Center in | New York in 2002.
Rebecca A. Miksad, MD, MPH Dana-Farber, Harward Cancer Center Research Interests and/or Clinical Specialties: Hematology, medical oncology Medical Education: Dr. Miksad received a B.A in economics from Harvard, an MD with honors in research from Cornell University, and an MPH from Harvard. She completed her internal medicine residency at New York-Presbyterian Hospital and her Hematology/ Oncology fellowship at BIDMC. She completed the NCI-funded post-doctoral fellowship in the Dana-Farber/Harvard Cancer Center Program in Cancer Outcomes Research Training (PCORT).
Research Interests and/or Clinical Specialties: Hepatocellular cancer
Abby Siegel, MD, MS
New York-Presbyterian Hospital/Columbia University Medical Center Research Interests and/or Clinical Specialties: Hepatobiliary oncology Medical Education: Dr. Siegel received her B.A. degree in English Literature from Brown University. She graduated A.O.A. from the University of Massachusetts Medical School, and received her Internal Medicine training at New York Presbyterian HospitalColumbia University Medical Center. She completed fellowship training in hematology and oncology at the Dana Farber Cancer Center/MGH joint program and at New York Presbyterian Weil-Cornell Medical Center..
Weijing Sun, MD, FACP
University of Pittsburgh Cancer Institute Research Interests and/or Clinical Specialties: Treatment and clinical research of GI malignances, development of new drugs and biologic/targeted oriented agents in treatment/therapy (including translational research) of gastrointestinal malignances Medical Education: Dr. Sun received his medical degree from Shanghai Medical College, Fudan University, in Shanghai. He completed his residency in internal medicine at Loyola University Medical Center in Maywood, Ill., and his hematology-oncology fellowship at the University of Pennsylvania in Philadelphia
Jeffrey C. Weinreb, MD, FACR, FISMRM Yale School of Medicine
Research Interests and/or Clinical Specialties: Diagnostic radiology, body computed tomography (CT) and magnetic resonance imaging (MRI); breast MRI; liver disease; MR contrast agents Medical Education: Dr. Weinreb received his Medical Degree from Mount Sinai School of Medicine in1978. He completed an Internship and Residency, where he served as Chief Resident at Long Island Jewish Medical Center, New Hyde Park, NY in Diagnostic Radiology. He served as a Fellow of The Hospital of the University of Pennsylvania, Philadelphia, PA, CT in Ultrasound in 1983.
Alan P. Venook, MD UCSF Medical Center
Research Interests and/or Clinical Specialties: Hematology/Oncology, Anal, Colon, Liver, Rectal Cancer Medical Education: Dr. Venook received his MD Degree in 1980 from UCSF, completed his internship at UCSF in 1981 and then completed a residency in Internal Medicine at the University of California, Davis. He returned to UCSF as a Hematology / Oncology Fellow in 1985, joining the faculty in 1988.
Please visit www.cholangiocarcinoma.org/mac for full biographies and photos.
2012 DONORS Friends of the Foundation (Donations $25 - $99)
Abelson, Robert Adams, Robert and Linda Albert, Greg and Bertha Albert, Laura A Allen, Jill Allman, Laura Alma Umeris & Family Amarticus Photography American Postal Workers Anastasia, John and Suzanne Appalachian Mountain Club NH Chapter Excursions Committee Arenge, Carole Arthur, John and Page, June Atlas Toyota Material Handling Austin, Jessica Avila, Jacqueline Baker, Dustin Ballesteros, Mirthra Balsamo, Nicole Banks, James L Barcelos, Nancy and George Barker, WM J. Barnes-Schuster, Lynn Barnold, John and Andrea Barryte, S and M Barth, Denise Beck, Graydon Beck, James and Marissa Beck, Meredith Beer, Larry and Donna Bell, William and Cheryl Benes, James W Bennett, James Bennett, Judy Benton, Miranda Bertram, Charles and SHaron Best, Carl and Angela Best, Leah Bisel, Shelby and Tremblay, Sandra Bishop, Raymond and Jo Blaauw, Russell Blackman, Gene BLACKROCK Matching Gift Program Blake, Gloria Blanton, Jennifer Bleich, Rodney Bodreau, Dendra Boggs, Robert D Boido, Nicole Bolton, Paola Borck, Kathy Botinas, Joao and Maria Boucher, Katherine Bowyer, Debbie Bradley, Nancy Brauer, Thomas and Janice Brenner, Steve and Charlene Briere, Laurie Britton, Kelly Britton, Richard Brock, Caleb and Janet Bruce, Kellye and Morrison, Michael Bruce, Twila E Brummit, Cassie Burger, Loretta Burke, Jim Butler, Janet Calheiros, Alexandre and Gaspar, Susana Cambre, Kosy Campbell, Elaine Caneja, Alexandrina Caporaso, Nicole Carlos, Danny and Kelly Carney, William and Eileen Carr, Robert and Georgetta Carta, Michele Carter, Paul and Jean Castelloe, Rebecca Castricone, Angelo Cerasoli, Kacy Cesarone, Chad Cesarone, Newana Chan, Clara Charlton Post Office Choi, John and Sarah Christian County Bar Assoc Clark, Ralph and Andrea Clarke, Denise Cline, James and Mary Coffman, Heidi Cohen-Jimeraco, D Phyllis Collins, Kathrine M Collosso, Kristen Connors-Krikorian, Maryann Conrad, Douglas and Karen Cook, Lucy Coons, Ross Cordill, Jerry and Bonnie Couden, Daniel and Nancy
Coughlin, Barbara Crawford, William and Lisa Crowley, Eileen Croxton, Alice Cummings, Doris Cunningham, Alfred Cusic, Richard and Karin Da Costa, Patricia Damacia Lewis Singleton Cox Communications Damm, Martin Dana, Margo Dandois, John and Diane Davidson, Ken and Barb Davis, Eleanor Deffenbaugh, Willis and Hermiel DeHart, Mark and Sharon Denault, Ronald and Linda DeWitt, Martha Dickson, David Barrett Dillon, Patricia Doerring, Nick Dominy, Kenneth and Larissa Dorman, Philip and Sandra Dubas, Lawrence Dudley, J and Reaves, Patrticia Duncan, Donald and Rebecca Duncan, Floyd R Durall, Larry and Karen Durick, Douglas and Laurette Dyer, Kristin Dzinglski, Andrew Eberle, James T Ecord, Louise M Eddy, Meryl and Stephen Edge, Jerry R. Eisenhower School PTO Eisfelder, Bart and Judy Eller, Nancy Elliott, Harold and Kathy Ellis, Holly EMH Regional Health Care System Endres, Lisa Evans, Cathy Farrell, David and Josephine Farrenkopf, Richard and Teresa Felice, Andrew and Eleanor Fender, Pamela Fenwick, Graham Ferreira, Ana S. Ferrell, Dean and Pamela Flavin-McDonald, Steve Fleske, Alfred and Elizabeth Fogg, Andrea Fox, William and Jane Francis, Howard Franzitta, Ella Franzitta, Orris Frederick, Brian and Karen Freitag, Michael and Lois Frick, Kevin and Debbie Friend, Mark Friends Of The Library Frye, Marti Fuller, Bettie Fuller, Charles and Patricia Funk, Virgil and Joyce Funkhouser, Jane Parker Fuoco, Frank Fusaro, Frank Joanne Gallagher, Monique Galloway, Doug Gallup, Brent Ganten, C Diane Gautreaux, Boyd and Regina Geddings, Tomian Gempeler, Amy George, Rosemary A Gibbons, Timothy and Deborah Gibson, IRREV Of Michael P Gill, Karamjit Gillespie, Chad Gioia, Michael Give Me An A Tutoring Golden, Lewis and June Goldsmith, Jesse and Mary Goodfield, Lawrence Gover, Michael and Jessica Graversen, David and Christine Gray, Paul and Jean Greenberg, Amanda Grenert, Ronald and Frances Gresholdt, Lois Grimm, Stacey Hackerott, Cyndi Hagstrom, James and Elizabeth Hall, Allen Hall, Arenetta Hall, Kevin and Janine Hall, Patty Halliburton Giving Choices Hammer, Sarah Hangey, Kathleen
Hanranhan, Carol Hansen, Karl and Barbara Hanson, Kristi Har Sinai Brotherhood Harker, Charmeon Harper, Dennis Harrington, Judith Harris, Kevin and Elizabeth Hart, Richard and Edith Hassall, Barry and Kathleen Hassall, Don and Patricia Hatch, Richard Hayes, Olivia Heitfeld, Fred and Pamela Helie, Randolph and Patrice Henry, Alison Henry, Debra Hereth, Kelley Herring, Louise M Hettrick, Gail Heuer, Linda Hewlett, Richard and Shirley Hicks, Brian Hidden Valley High School Band Boosters Higgins, Kathryn Highland, Harry and Pamela Hight, Pat and Cyena Hiltz, Brenda Hinz, Robert Hoch, Judith Hoge, Donald Hogsten, Jennifer Holeczy, Nancy Holland, Chad Hooker, Mike Hopkins, Gary and Corrine Horan, Marie Hornung, Paula Hoshizaki, Ross Houlihan, Edith Houser, Abby Howerton, David and Kay HQ Nyang Assoc. Inc Hubbart, Roxette Huether, Colleen Huff, Jenny Hughes, Mike and Amanda Hurley, Kevin Ignace, John and Sherry Inchcape Shipping Services Irrera, Nunzio and Cynthia Jardine Middle School Jensen, Nancy Jindal, Virender and Savitri Jirak, Richard and Connie Johnson County Mental Health Family Focus Johnson, Phil and Molly Johnson, Tracie Johnstone, Gerry Jones, Keith Jubanowsky, Taylor June Peay & The Republican Legislative Delegation Justin Kabak, Patti Kagey, Donald and Julianne Kamens, Neal and Sherry Kamyar, Royan Kane, Jodie Kansas State University Kaplan, Robert and Bonnie Kaptena, Laurette Kasenic, Suzanne R. Kaulbach, Peter and Elizabeth Kawahata, Russell Keenan, Nancy A Kegley, Brian and Rebecca Kelso, Alison Kennedy, Marjorie and Borchgrevink, Barbara Kennerly, Clinton Kern, Henry and Jane Kesecker, Ed and Lisa Kieft, Mark and Amy Kincaid, Jeremy and Stacey King, Thomas and Jennifer Kirby, Jessica Kline, Kristen S Kloecker, John Klotz, James and Mary Knox, Gary and Louise Kobs, Gary and Geralyn Kolar, Kritan Krier, William and Sharrett, Robert Krochta, Claudia Kudzma, Gerald and DeAnne Kunis, Suzanne Kunstek, Lydia Kushner, Jennifer Laidlaw, Al Landis, Karl and Deborah
Langford, James Lasman, Paul Lawler, Robert and Mary Lawrence, Alexandra Lebbert, Thomas and Sharon LeBlanc, Kenneth and Barbara Lee, Leslie Lee, Roger Lefkowitz, Gregory Legreid, Bradley and Marcyline Leighton, Lisa Morang Lemmon, Annaliese Leszczynski, Patricia Levesque, Lindsey Linsen, Ellen A Loeb, Lisa Parla Long, Derek Love, Jasmine Loyd, Duane H Loyd, Marjorie M Lucky Realty Associates, Inc. Lundmark, Arnole and Judith Lyman, Lily MacGregor, Lydia MacKay-Dunn, Allyson Magalhaes, Judith Maida, Raymond and Diane Mainella, John and Patricia Mancha, Aaron Marbach, Sue Marcus, William and Audrey Mark, William and Blackburn, Mary Marquardt, Frank Marquez, Michael and Terese Marshall, Murray Martinez, Enrique and Paula Martinuik, Jim Massey, Larry Mawhorter, Robert and Karen McCalmon, Erin McClarey, Angel McClelland, Donna McGowan, Michael and Kay McGuirt, Rick McIltrot, Tom and Eileen McKee, Siobhan McMillan, Shawna McNiff, Judy McTaggart, William Meadows, Patricia Meckfessel, Karlene Medeiros, Michael Meguriya, Ikuko Meitz, Sally Mele, Alicia Melgaard, Debra Mellquist, Gregory Menard, Nena B Meotti, Tom Merrill, John and Shirley Michael C Reynolds D D S Michael, Mingy Millard, Cris Miller, Debbie Miller, Linda Mills, Dan Milmine, Lori Monte Carlo Board Of Directors Moore, Charles Moore, L A. Moore, Nancy Moore, Ryan Morris, Kathrryn Morris, Sandra Ms. Kucharchuk & Pokeno Group Muchmore, John Mullen, Anita N Mullen, Judith Mullick, Taresh Mulligan, Kristine Lee Murphy, Deborah Musto, Haydee Myers, James and Gail Narrajos, Rebecca Nash, Daryl and Rachel Neujahr, Mary Nevarez, Yvonne Neveras-Lupfer, Daphne Nicol, Cregg and Sharla Niemy, George and Gail Nightingale, David and Teresa Nizich, Jeffery O’Donovan, Dennis and Anne O’Reilly, Dennis and Karla O’Shea, K.P and V.L Obermoller, Douglas Obert, Brenda Oliver, Patricia Ong-Maguire, Kim Orchard, Orin Oship, Diane Padmoroff, Alex Pang, Nancy
Park, Brad Parr, Linda Patel, Pepe and Trupti Pendray, Kate Penley, Erland and Barbara Penn-Jersey Scrollsaw Assoc. Percic, Claudia Pereira, Antonio and Linda Perotti, Dolores Peterson, Leslie Pierson, Michael and Judy Pimley, William and Marie Pittman, James and Michelle Place, Danny and Elaine Polen, Patricia Poley, Bruce Portras, Jason POS Systems Group Inc. Poston, Stephen & Debbie Pratt, Charles and Joan Prigge, David and Teri Prisk, Francis Proctor, Patricia Puisto, Dale and Catherine Purcell, Teague Quakenbush, Gary Quartaro, Donna Quinlan, Greg Ralph, Mike Ralston, Donald and Patricia Ray, Anne Ray, Richard and Dollie Ray, Richard and Dollie Rear, Kortney Rear, Kortney Reed, James and Carolyn Reed, Timothy and Jill Reese, Angeline and Smigiel, Debra Regier, Alexandra Reid, Sandra Reidy, Mary Reis, Nelly and Goncalves, David Remke, Dennis and Carol Reuss, Celia Reynolds Construction Management Inc Reynolds, James Ribordy, Wayne and Lesa Rice, Mark Riggs, Jamie Roach, Randall and Nancy Robertson, Margie Rodgers, Pam Rogan, John Rogers, Nancy Rogers, Warren Rolinson, Gloria Romanelli, Frank Romaniello, Nicholas and Eileen Rosen, Gary Rosenberg, E. Rosenberg, Ed and Eleanor Rosenfield, Lily and Jay Rosse, Betta Roth, Sanford and Sandra Rourke, Robyn Rowe, Renae Royer, Jacquelyn Russel, Tina Sabiston, Corry Sadler, Jennifer Saho, Karen Salehizadeh, Kathy Salisbury Police Dept. Sanders, Roy Saulnier, Anne Saxon, Laura Sayles, Bryn Schlageter, Amy Schmidt, Henry Schmidt, Marvin and Martha Schmidt, Michael and Vicki Schmidt, Ruth Schmidt, Shelby C Schneider, Mark Schoenbine, Janet Schorfheide, Julie Schulman, Barbara Schwartz, Robert Schweitzer, Eric Scinto, Tania M. Scott, Gregory and Lucinda Scott, Jim Scott, Winston and Worthington, Darlene Scribner, Sue Sears, William Seide, Richard and Pamela Seidemann, Joel Selsberg, Julie Sharifi, Maryann Sheriff, Stacey
Shine, Rosemary Shirey, Kate Shiver, Brian Shoenbine, Janet Shook, Sharon Shotwell, Wendy Simpson, Claudine Singler, Susan Singletary, Marian C Sinnaeve, Joseph and Laura Slater, Carl and Mary Smaldino, Jennie A. Smetanko, Bradley and Andrea Smith, Bill and Leda Smith, Linda Smith, Mark Soden, Gabriel Soden, John Soden, Patsy Soderman, Wayne and Martha Sok, Mark and Geneva Soricone, Lisa and Donis, Joseph Spisak, Lori Sprague, Linda Belle Stees, Carolyn Sue Stevenson, Brent Stickley, Gary Stigler, Willie Strathie, Natalie Strobel, Al Strube, Paul and Helene Stubblefield, Karen Sudbring, Amie Sutherland, Meaghan Sutherland, Robert and Jayne Swalheim, Duane Swalheim, Kristie Swayze, Chris Tackett, Mark and Tracie Tallman, Marilyn Tarter, Sharon G Taylor, Joseph Taylor, Marilyn M Tech Tool Akron Territo, Thomas and Patricia Teser, Kaitlyn Tharp, Jane Thomas, Andrea Thomas, R and Coffey, Maria Thompson, Lisa Thompson, Regina Thurmond, Melinda Tom, Bonnie Tramel, Cynthia Travelers Employee Giving Campaign Troy, Martin and Cynthia Troy, Stefanie Tucker, Erica Tucker, Patrick S Turpin, Margery Unnites, Dennis and Long, Mary Unruh, Galen and Yvonne Valente, Virgil and Stephanie VanMeter, Kathy Vaughht, Melba Faye Veilleux, Larry and Margaret Vetor, Nancy VFW Jackson County Post Vizzoni, Margarida Vroman, Dale and Gracanne Vuong, Thong W.W. Grainger, Inc. Waite, Wesley and Deborah Waldroup, Andrew and Dana Waldschmidt, Gerald Watson, Gwendolyn Webb, William and Janis Webster, DJ Welton, Amy Whirlpool White, Charles and Jan Whitlock, Kelly Wilkinson, Linn Willemssen, Calvin and Lynne Williams, Dale and Karla Williams, Gary and Sheri Winters, Robert Wiseman, Carol Woolery, Mia Worthington, Darlene Wrench, Barbara Wright, Edward and Lenaire Wrisley, Martha M Wronkowski, Donald and Christina Young, Christine Zablocki, Rudolph Zambrano, Juanita Zeiltin, James Zeligson, Scott Zertuche, Fidenzio Zucca, Lorei
(Donations of $100 - $249)
Edwards & Mailath LLP
Allen, Audrey and Drumheller, William
Ellington, Phlecia G
Shipp, Chad and Kristi
Allen, Steven and Deann
Fahey, Carol A
Law Offices Of Kathy Baker-Bowen
American Pilot’s Association
Levine, Richard M
Ameritas Life Ins. Company
Littrell, Teresa G
Siemers, Denise M
Anthony & Jillanna Apro, Sr.
Aquino, Salvatore and Loretta
Silk, David and Crandall, Lynne
Atkinson Academy Activity Fund
Macdonald Page & Co LLC
Maiale, Nicholas J
Silvanik, Robert and Amy
Baker, Christopher and Kristen
Girl Guides Of Canada
Marraffa, Dominic and Kellie
Gotcher, Dick and Susie
Barry, Talbot, Royer
McCain, Mary Ellen
Graham, Dennis and Krista
Mehalic, Thomas and Marilyn
Bolan, Terry and Flowers, Ralph
Bramhall, Geoffrey and Kathleen
Microsoft Matching Gifts
Brossett, David and Hyun
Grosshart, John R
GTF Construction LLC
Morgan SHipping Agencies Inc
Gutch, George F
Haggett, Bill and Sally
Murphy, Thomas and Cleo
Hakim, Ramez and Katrine
Nello Development Corp
Nice, Susan G
Steinbach, Jennifer D
Hamilton, Janice and Heinemann, Mark
Canton, Rebecca C
Nolan, Susan J.
Suitor, James and Sara
Cape Elizabeth Youth Football
Hargis, Donald and Martha
Nordin, Loren and Susan
Taliaferro, J and Shirley
Hargis, Dorwin and Kathy
Oven, Deni E
Central Cal C.O.P.S. Chapter
Hatch, David and Judith
Chai, Ling Ling
Pelphrey, Steve and Elizabeth
Thorp, Walter and Eleonore
Town Of Brentwood
Chance, Don and Jan
Hight, Louis and Deborah
TTEE, Patricia B Couturier
Peterkort, Steve and Molly
Chapman, Richard and Leslie
Phillips, Anthony and Kristi
Van Denabeele, Matthew and Nicole
Chari, Ravi and Sweta
Hobbs, DeWayne and Debbie
Phillips, Betty J
Vander Crussen, Sylvie
Hojnoski, Joseph and Helen
Phillips, Marvin and Mary
Chernov, Sheldon and Adrienne
Huffman, David and Rebecca
Varian Partners In Giving Program
Chillous, Sandra E
Choi, Lily Albert
Putnam, Roger A
Coventry Property Services, Inc
Crowley, Elisabeth M.
Crownover, Melissa S
Johnson, Richard O.
Johnson, Robert D
Roberts, William and Anna
Dalton, Gene and Kathy
Jones, Timothy and Marcia
Davis, Thomas and Kelli
Jones, Wilford and Jessica
Rogers, Lee and Beth
De Haan, Richard
Rourke, Delores M.
Julia Collins & Family
Rozak, Dennis T
Rufledt, Mark and Theresa
Kersey, Matthew and Marianne
Weber, William and Anne
Dixon, Lydia M
Key, Tim and Pamela
Saia, Richard and Colasanto-Saia, Eloise
Wendlegast, Thomas and Esther
Saulnier, Judith A
Wereska, Frank and Susan
King, David and Danielle
Doyle, Gerard and Pam
Kinnett, Jock and Linda
Wittgens, Frances E
Dupont Chemicals & Ms. Skrotsky
Durall, Joy and Perry
Lane, David and Robin
ZF Trading North America, LLC
Sklar, Marc and Susan Smith, Diane M Smith, Whit Snacks Of NH Sneddon, Graham Society Of The Plastics Industry Soden, Conor Spinney, Mark and Laura Spiser-Albert, Valarie Squyres, Nancy Stalnecker, Susan M Stanton, Kelly Steele, Rodman
Vaught, Faye Verrill Dana Attorneys At Law Villa, Peter L. Vining, Linda Viso, Jorge W, K Warren Walters, Barry and Claudia Walton Technologies, LLC Wangerin, Linda L. Watkins, DF Wayne, Robert and Noble, Elizabeth Webb, KR and KM Webber Energy Gasoline
2012 DONORS Partners Circle
(Donations of $250 - $499)
Allstar Marketing Group, LLC Bell, Vickie Bessemer Trust Burrage, Leone J Butterfield, Hazel A Cafepress Cassidy, Kenneth Chesson, Timothy Clark, Marlene David Lynch Big O Tires & TBC Retail Group Donovan, Joanne
Egeland, Janet First Giving Gola, Ronald and Donna Hall, Kenneth and Sheri Hood, Ben Humphreys, Peter Josh Steinbach Volleyball Camps Kozak, Brian Kracht, Patricia Krumrine, Richard and Jaclin Levine, Brian
Lockwood, Jessica Majithia, N Matos, Paulo and MagalhesMatos, Paula Newcamp, Alison Owen J Roberts School Dist. Owen, Margaret Patel, Jyoti Paul Toth Excavating Inc Pfizer Foundation Matching Gifts Program Porter Memorial Baptist
Church Price, Andrew Propeller Club Of United States Rick, E and Mize, Joyce Russel, Crystal S & L Food Sales, Inc Sandy Hook Pilots’ Benevolent Association Sartain Fischbein & Company Shaw, Richard Willis, Steven and Brenda
(Donations of $500 - $999)
Blohmke, Carl & Eric Bryant, Harry W Coates, Janette Cross, Richard and Sheryl Fidelity Charitable Gift Fund Irwin, Robert and Gail Khanna, Chander
Kimbouris, Aleko Madiman,Mr. Mokshay & Mrs. MaryLea Pereira & Azevedo, LLC Pereira Family RO Foundation Russell, Walter Strawn-Smith, Donna
Sweat For A Cause LLC TRUIST Ur, John Ward, Billy Wehner, John
(Donations of $1000 - $4999)
A.A Beiro Family Foundation Farabow, F.F. & Sara Beiro Green Family Fund Santos, Michael
Justgive Ranholm, Hans Strawn-Smith, Donna
(Donations of $5,000 - $9,999)
Bureau, Stacy Micro Giving Foundation Dupont, Barbara
(Donations of $10,000+)
Andrea Remembered-Dan Furquay Shanks, Katie Tee Off For Hope Fundraiser Turbeville, Sean & Dana